The EXPERTS-ALS study has found that Metformin and Nifedipine do not lower neurofilament light chain levels in the blood. As a result, we will now stop entering new participants onto the Metformin and Nifedipine arm of the study. What is an interim analysis? An interim analysis is when the results are reviewed during the…
Join us from Ipswich to Huddersfield, 18th-21st June 2026 From 18th to 21st June 2026, we’ll ride from Ipswich to Huddersfield, finishing on World MND Day. This journey honours Marcus Stewart – a Town legend and former player now battling MND – and is our way of giving back and showing support. Funds raised…
SCOTTISH MARCH OF THE DAY October 10-12, 2025 The Darby Rimmer MND Foundation and the My Name5 Doddie Foundation are proud to share that they are working together to stage the Scottish March of the Day, a continuous 146-mile fundraising walk around 22 football grounds in Scotland. Each Foundation will have a core team of…
Global MND Awareness Day Each year on June 21, the MND Association and international community come together for Global MND Awareness Day, honouring all those affected by motor neurone disease.
Darby Rimmer MND Foundation commits over £1.2 million towards MND research. After our recent research funding round the Foundation has agreed to support EXPERT-ALS by donating £700k. The Foundation’s support will allow more drugs to be used in the pre-trial platform. You can find out more about EXPERT-ALS using the link below https://www.experts-als.uk We have…
85 runners Over £47,000 raised Darby Rimmer MND Foundation would like to say thank you and well done to all the 85 runners who ran and took part in this year’s Great North Run. We know the time and sacrifices all the runners make to train for the run. We would like to thank everyone…
Football stars Stephen and Steph Darby (née Houghton) join Rob and Lindsey to talk about what life is like living with MND. The couples talk about how female sport is depicted and what their hopes and dreams are for their families in the future. This episode was recorded in 2024 before Rob passed away on…
Stuart Coburns Testimonial for The Darby Rimmer MND Foundation Sunday, July 28th @ 3:30pm The J.Davidson Stadium Donate here – https://www.justgiving.com/page/neil-faulkner-1721033821992?utm_term=pX5Ak4mwd
In March 2023, we launched “The Chris Rimmer Grant” in memory of our co-founder, Chris Rimmer. When Chris was diagnosed he wanted to help and support others who were diagnosed with mnd. Throughout his battle with mnd he knew how difficult it was to receive support especially as the disease progresses and individuals and families…
Project: Target identification of oxidative stress response-modifying drugs in an ESC-derived motor neuron model of ALS Lead Applicant: Professor Kevin Talbot Amount funded: £79,991.29 In 2022 we agreed to fund the research project above. This research project has now been completed. Those with MND need an armoury of drugs NOW to help with disease progression…