On Wednesday 12th September 2018, 5 years ago today, I was diagnosed with Motor Neurone Disease. To put this into perspective, 80%-90% of people who are diagnosed with MND die within 5 years. A third of people who are diagnosed die within a year, and half of people diagnosed die within two years. I count myself one of the lucky ones.
Daily tasks are tougher, some tasks require help and some require more effort but I feel that effort is a privilege. It’s a privilege because although it’s harder it means I’m still able to do it.
I have met so many incredible people in the last 5 years. The MND community is a special group. It’s not a group any of us want to be part of but the strength and fight that people and families show on a daily basis is inspiring. Myself and the foundation will always do everything we can to help make a positive impact on MND.
I’d like to thank everyone who has been part of the journey over the last 5 years. Your support, kindness and generosity has helped us make a positive impact on those who are battling MND and that support will continue to help us make a difference.
The fight goes on.